Wednesday, 13 July 2016

Well I have just had few days off, mainly due to the fact that nothing was happening. But we are back in business now.

For a few days in the middle of last week the pain level was down, not down down just down a little, enough to give Elaine a bit of respite. Then on Friday it came back, I don't think quite as bad as before the treatment, but certainly it was making its presence felt. We were warned that the treatment would initially inflame the tumour before it starts to shrink, so I guess this is the inflammation part. Hopefully it will go down in size soon and Elaine will get some real relief.

Last week Genesis referred us to Silver Chain, which I thought was just a home nursing service. It is that, but that is a very limited description of what seems to be a very large organisation. After a couple of phone calls our (or she will be) nurse came to visit, here in the van, to fill out the paperwork and get us into the system. They are aware that we will be going back to our house soon and the service will continue there. The paperwork was extensive to provide them with a full history and details of doctors and treatments. They will monitor all that, keep in touch with both us and our medical team and can provide 24/7 assistance if needed to avoid having to go to hospital. All very impressive, particularly when you add in that they can provide various bits of equipment to help us out at home. Then in the afternoon a doctor visited to add to the file and at the same time suggested a medication change (to which Dr Chan agreed) and will be part of the Silver Chain team. All very very impressive and nice!

Today we visited Dr Chan the pain specialist at his clinic ar Charlies, where he likes to see us, rather than his rooms, although that may change down the track. He basically just confirmed, with some minor changes, the medication list and arranged to see us again in 4 weeks.

2 comments:

  1. Slow and steady wins the race. Love you both.

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  2. Baby steps, that's the way to do it. Silver Chain are brilliant, glad they're involved now. Keep warm, hope you have lots of blankets in the van. Love to you both Jx

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